Report reveals impact of little-known disorder affecting one in 20 children
An Australia-first report released today reveals the significant educational, social and emotional toll facing children with Developmental Coordination Disorder (DCD). The under-diagnosed and misunderstood condition affects about one child in every Australian classroom.
Researchers at Victoria University and Telethon Kids Institute in Perth surveyed parents of 443 children across Australia for the Impact for DCD Survey, the largest survey ever conducted in the world on family impacts of the condition.
Often described as a ‘hidden disability’, DCD is a little-known neurodevelopmental condition, even among health professionals and educators. Its effect on motor skills and coordination means children with DCD have trouble with everyday activities like getting dressed, eating, writing, running, or playing.
The condition commonly co-occurs with other neurodevelopmental disorders, such as ADHD or autism, meaning a DCD diagnosis can often be delayed and children can wait several years for treatment once parents first raise concern.
The report provides an evidence-based blueprint to better support children with DCD, and their families.
VU co-researcher Associate Professor Jacqueline Williams says the report aims to raise awareness and ensure better standardised diagnosis, treatment and support for the lifelong disorder. It calls on state and federal governments to recognise DCD and provide financial support for improved therapies and services.
As DCD children are eligible only until age seven for NDIS ‘developmental delays’ funding, many parents also report significant and long-term out-of-pocket expenses for therapists such as exercise physiologists, occupational therapists, speech pathologists or psychologists.
Telethon Kids co-researcher Dr Melissa Licari said more than 80% of families surveyed reported DCD negatively affected their child’s potential at school because teachers were unaware of the condition. Nearly all were concerned about the social and emotional health of their child.
Report recommendations include:
- adoption of consistent and correct terminology and standardised practice for DCD in Australia
- clear diagnosis to identify children at risk of DCD before age five to enable early intervention
- funding by education departments for DCD teacher awareness training and resources
- increased community awareness of DCD and inclusion strategies, particularly in sporting clubs.
